Help Sibusiso Ndiweni access the best care and services

My son has special needs arising from Tetralogy of Fallot (TOF), a congenital heart condition he has had since birth. In 2022, he experienced seizures related to this condition, which resulted in brain damage sustained during his admission and stay at the Intensive Care Unit at Mpilo Hospital. He later underwent corrective heart surgery in India in 2023 and hip alignment surgery at Cure Hospital in Zimbabwe in 2025. His condition is permanent and requires ongoing specialised care and close supervision. He is fully dependent for all daily activities, including feeding, mobility, dressing, and personal hygiene. He also has difficulty chewing and swallowing hard food, which requires specially prepared soft meals and fruits. The cost of providing this specialised care and diet has placed a significant strain on my financial resources. His mother and I are solely responsible for his care, and she is unable to seek employment as she provides full-time care.
We had previously started physiotherapy sessions but these had to be stopped due to his dislocated hip. He is scheduled for a medical review at Cure Hospital on Monday, 18 May 2026, after which physiotherapy will resume and speech therapy is also yet to commence. I also have an eight-year-old daughter is school-going and depends on me for both financial and parental support.